Anisia's Hope - Fighting Batten Disease
“We support children, young people and adults affected by Batten disease (neuronal ceroid lipofuscinoses, CLN1-CLN14). Recently registered, we currently provide information, advice and signposting, and are establishing support covering equipment, therapies and services. We will fund research into causes, treatment, prevention and cure, and educate the public, professionals and carers.
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Where this organisation works
Anisia's Hope - Fighting Batten Disease is a UK-registered charity with area of operation in Germany, Spain, Italy and United States .
In the UK, Anisia's Hope - Fighting Batten Disease works in England And Wales.
placeRegistered office: West Midlands
